Parents of Childen With Lyme

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Lives Torn Apart by Lyme

Lyme takes its toll in many ways. Never know it, do we, upon diagnosis. Just glad to have a name for what ails us, and to have "treatment." Boy, what a shock - and the beginning of a new, very weird existence.

An existence that encompasses your loss of health, loss of ability to work (in many cases), inability to get compensation for medical treatment from your insurance company (which you pay high dollars for), loss of family support, alienation of friends (because you're no longer "who" you once were).

Then, to top it off, you realize that you have entered a whole new political arena that you never knew existed and you never wanted in the first place. Your own doctors are under attack from the medical community and the corrupt insurance companies. You have become a financial liability for them. Sick as you are, you have been "drafted" into this fight to protect your own access to life and health and appropriate treatment to retain some quality of life.

That's what's happened to us all. We didn't ask for this. We didn't want it. BUT.we HAVE to fight as much as we are able to or face losing everything in the process. With no one willing (or able) to treat us, where will we be? Our families have deserted us. Our friends have given up on us. No one wants to listen to our tales of woe or witness our daily decline. It's too painful, so they ignore us. They want us to go away. Guess what? We won't go away! We can't go away!

We are a threat to the insurance companies because we don't die as fast as AIDS patients from this disease. We just get sicker. We are a greater burden to society - to insurance companies and disability companies. Our families don't want to deal with us. They think it's all in our heads - we're over-exaggerating. If we had "real" illnesses, like cancer, maybe they'd be sympathetic for a time. But, with cancer, you're either cured or you die. Not so with Lyme. It's not just patients who endure this humiliation. So does any doctor that's compassionate enough or strong enough to answer the call of treating Lyme patients. They could get rich, become highly respected, if they specialized in treating other diseases. But, they are dedicated. They suffer more than we can possibly imagine - professionally, economically, and emotionally. I salute each one of these brave, committed doctors -- doctors who take their calling seriously. They are not in it for the money, or the notoriety. They are in it for the benefit of a suffering group of people - a group that grows larger each day. A group of people that will grow even larger if we cannot find a prevention, a cure, and have assurance of appropriate treatment by these wonderful Lyme specialists who have suffered the devastating effects of Lyme Disease almost as much as we have.

Rose
http://www.angelfire.com/tx3/RoseWriter

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Last Revised: 05/10/2005.
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Cyntha Landon