|
|||
|
|||
Ecucational Links
Within
How is it that I Sit and nothing comes to mind it is rather strange that I feel nothing inside.
A Disease is within I don't know how to change it, it seems only to destroy all feeling, all joy.
Then why do you hurt me and why cant I hurt you back no sympathy no seeing no holding back.
How is it that I see nothing but loneliness many times left to battle it alone no love no tenderness from the battle I fight within.
Like many days I am left to fight alone it invades my every being trying to destroy who I am
No not me, I say every day no possibility, No way but yet it is always there reminding and crippling me.
No not me, I will fight I will win, somehow somewhere I'll kill them within.
|
Please click on banner!!
Please help us by displaying one of our banners. Thanks.
Lives Torn Apart by Lyme
Lyme takes its toll in many ways. Never know it, do we, upon diagnosis. Just glad to have a name for what ails us, and to have "treatment." Boy, what a shock - and the beginning of a new, very weird existence.
An existence that encompasses your loss of health, loss of ability to work (in many cases), inability to get compensation for medical treatment from your insurance company (which you pay high dollars for), loss of family support, alienation of friends (because you're no longer "who" you once were).
Then, to top it off, you realize that you have entered a whole new political arena that you never knew existed and you never wanted in the first place. Your own doctors are under attack from the medical community and the corrupt insurance companies. You have become a financial liability for them. Sick as you are, you have been "drafted" into this fight to protect your own access to life and health and appropriate treatment to retain some quality of life.
That's what's happened to us all. We didn't ask for this. We didn't want it. BUT.we HAVE to fight as much as we are able to or face losing everything in the process. With no one willing (or able) to treat us, where will we be? Our families have deserted us. Our friends have given up on us. No one wants to listen to our tales of woe or witness our daily decline. It's too painful, so they ignore us. They want us to go away. Guess what? We won't go away! We can't go away!
We are a threat to the insurance companies because we don't die as fast as AIDS patients from this disease. We just get sicker. We are a greater burden to society - to insurance companies and disability companies. Our families don't want to deal with us. They think it's all in our heads - we're over-exaggerating. If we had "real" illnesses, like cancer, maybe they'd be sympathetic for a time. But, with cancer, you're either cured or you die. Not so with Lyme. It's not just patients who endure this humiliation. So does any doctor that's compassionate enough or strong enough to answer the call of treating Lyme patients. They could get rich, become highly respected, if they specialized in treating other diseases. But, they are dedicated. They suffer more than we can possibly imagine - professionally, economically, and emotionally. I salute each one of these brave, committed doctors -- doctors who take their calling seriously. They are not in it for the money, or the notoriety. They are in it for the benefit of a suffering group of people - a group that grows larger each day. A group of people that will grow even larger if we cannot find a prevention, a cure, and have assurance of appropriate treatment by these wonderful Lyme specialists who have suffered the devastating effects of Lyme Disease almost as much as we have.
Rose
http://www.angelfire.com/tx3/RoseWriter
Lyme Disease can't be discussed in so short a detail. But I can certainly say it destroys many people's lives. Some have even been so devastated by it they decide it is better to be dead. This however is not the way to go. You can fight it and you can beat it if you are determined and patient. The key word is patience.
Lyme Disease can be transfered to you from a tiny tick, even as small as the dot at the end of this sentence. Many people do not remember being bit. Lyme Disease can also be transferred by misquitos and fleas. There is also tests being done on other bugs and even the spider to see if they can transmit it also but this has not yet been proven and is not in medical journals.
Woman who are pregnant can also pass it on to their children. This happened in our family. Please read our story click here. I have many links to learn more about Lyme Disease . Because of these links I am not going to write much about it. There is so much excellent material out there and I figure they can explain it better than I. I do however hope soon to have some comments made by Lyme Literate Doctors about Lyme Disease. I am including a Symptom list below:
Tick Bite
Rash basically circular, sometimes spreading. The rash occurs in fewer than 50% of Lyme patients. It may be centered on the tick bite and/or anywhere else on your body.
Musculoskeletal System
Joint pain or swelling Joint stiffness, especially back or neck Muscle pain or cramps Creaking, cracking "joints" Aches in palms and/or soles of feet Spinal sensitivity Shin splints Foot pain (ankle, heel, plantar fasciitis) Gait disturbance Clumsiness Movement of pain or swelling to different "joints" Backache Fibromyalgia (generalized muscle pain) Herniated disc Tendonitis Bone pain Hand stiffness Cartilage erosion In babies, low muscle tone
Neurologic System
Headache--persistent/severe Bell's Palsy (facial paralysis) Burning or stabbing pains Tremors or unexplained shaking Numbness in body and/or extremities Tingling sensations Pinprick sensations Weakness or partial paralysis Pressure in the head Lightheadedness, wooziness Fainting Twitching Poor balance, dizziness, difficulty walking Increased motion sickness Alternating warm/cool sensations at various locations Constant low body temperature Seizures, stroke symptoms Abnormal blood flow in brain Brain hemorrhage Abnormal brain waves Diminished reflexes Restless legs
Mental Capability
Memory loss (short or long term) Confusion difficulty in thinking "Brain fog" Declining performance in school Forgetting how to perform simple tasks Speech difficulty (slurred or slow) Drop in IQ Dementia Dyslexia, word reversals Stammering, stuttering speech Going to the wrong place
Psychological well-being
Mood swings, irritability Unusual depression Panic-anxiety attacks Overemotional reactions, crying easily Aggression, rage Too much sleep Difficulty falling or staying asleep Ferocious nightmares Obsessive-compulsive behavior Suicidal thoughts Paranoia Disorientation (getting or feeling lost) Abnormalities of taste or smell Depersonalization (losing touch with reality) Low self-esteem Bitterness, guilt, alienation Bipolar disorder Schizophrenia-like disorder
Head, Face, Neck
Stiff or painful neck Twitching of facial or other muscles Painful gums Difficulty swallowing Hoarseness and/or drippy nose Painful teeth Pressure in head Cracks around sides of mouth Sore throat Unexplained hair loss Scalp rash
Eyes, Vision
Floaters Double or blurry vision Pain in eyes Swelling around eyes Light sensitivity Conjunctivitis Pressure in eyes Flashing lights Tearing and/or dry eyes Vision loss/Blindness
Ears/Hearing
Decreased hearing in one or both ears Buzzing, clicking, or ringing in ears (tinnitus) Pain in ears Sound sensitivity
Digestive and Excretory System
Diarrhea constipation Abdominal pain Irritable bladder (trouble starting, stopping) Frequent urination Upset stomach, vomiting Bloating Hemorrhoids Gastroesophageal reflux (acid reflux) Anorexia
Respiratory/Circulatory System
Shortness of breath Chest pain or rib soreness Night sweats or unexplained chills Heart palpitations or extra beats Heart block, heart attack Valve prolapse, murmurs Elevated blood pressure Frequent and easy bruising Vasculitis (inflamed blood vessels) Cough (non-productive)
Reproduction
Loss of sex drive Sexual dysfunction Unexplained menstrual pain, irregularity Unexplained breast pain, discharge Testicular or pelvic pain
General Well-being
Extreme fatigue Symptoms change, come and go Pain moves to different body parts Unexplained weight gain or loss Malaise Chills Unexplained sweating Any type of rashes on the body and/or scalp Swollen glands Unexplained fevers (high or low grade) Itching Continual infections (sinus, kidney, yeast, bladder, etc.) Increased sensitivity to allergens Exaggerated response to alcohol Exaggerated response to sweets Nodules under the skin In babies, failure to thrive In babies, delayed development Did you experience a flu-like illness, after which you have not felt completely well?
Have you been diagnosed with:
MS (multiple sclerosis) Parkinson's disease Gout Carpal Tunnel Syndrome Hepatitis TMJ (jaw pain) Fibromyalgia Lupus Chronic Fatigue Syndrome ALS (Lou Gehrig's disease) Crohn's disease Psychological/psychiatric symptoms ADHD (Attention Deficit Hyperactivity Disorder) Epstein-Barr virus -------------------------------------------
This list of symptoms above were taken from a Pamphlet written by: Lyme & Associated Diseases of the Brandywine Valley http://www.ladbv.org An affiliate of the Lyme Disease Association
The information in this website is not intended to be a substitute for professional medical care or evaluation.
Copyright © 2002 by Parents of Children With Lyme. All Rights Reserved.
Please review our Terms and Conditions for use of this web site and discussion board.
Last Revised: 05/11/2005.
Questions or comments, write the Webmaster.
